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Susan watched her independent, self-reliant mother’s dementia progress until she and her siblings realized their mom could no longer manage alone. What followed was years of difficult decisions about care and finances.

“It’s alarming to realize your mother can’t take care of herself anymore,” Susan says. Caregiving became overwhelming fast — coordinating medical appointments, managing medications, monitoring spending, and preventing elder scams, all while she and her siblings held full-time jobs in different cities.

Five Steps for New Caregivers

  1. Secure finances immediately by monitoring spending and preventing fraud.
  2. Organize family communication through a designated committee and scheduled meetings, not ad-hoc group emails.
  3. Consult an attorney early regarding legal and paperwork requirements.
  4. Research senior housing options before urgent need arises.
  5. Prioritize your own health with resources like the American Medical Association’s Caregiver Self-Assessment.

Susan ultimately advocates for advance planning: she wouldn’t want her own children facing the unanswered questions her family encountered.

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What will senior living cost, and how will we pay?

Our free guide shows the starting prices communities post for each kind of care, walks you through a monthly budget, and explains how insurance, VA benefits, Medicaid and Medicare can help.

Cover of the Lilisity guide Paying for Senior Living

Free guide · 16 pages

Paying for Senior Living

Costs by type of care, a monthly budget, and how insurance, the VA, Medicaid and Medicare help.

Cover of the Lilisity guide Paying for Senior Living

Free guide · 16 pages

Paying for Senior Living

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Free for families. No community pays Lilisity per inquiry, per referral or per move-in. How we are paid.